Has anyone gone through this battle (stage 4 hcc)? Diagnosed 4/2015 given 6 months to live and still fighting.
Where did you get treatment? I am in NY, USA so Cleveland, Pittsburgh, Rochester, Albany, NYC is all doable. MD Anderson in Texas is #1 but the travel and cost is not an option now, but could become 1.
Where wouldnt you go for treatment? Roswell in Buffalo NY, is out. Surprised i didnt make news headlines after that fiasco.
Will not consider clinical trials, she got talked into 1 (was not present for Doctors recommendations) and i lost the first 4 months with her due to complications.
Alternative treatments ? I already started with CO and the tumor started to shrink, but the last batch was to strong or wrong strain / ratio tch cbd, and she thought it was 1979 for a month. Since then she is leery about it.
Any help or suggestions would be great. I would appreciate it if you or a loved one has gone through this battle to answer, since it would be experience and not " i heard that this place is good or this med/treatment/facility is on facebook and says it helps...."
I am 100% serious about this. This is not a joke of any kind, just looking for any thoughts with experience. I feel like i cant trust her GP since he sent her to Roswell, and the Oncologist said there is no treatment in this area, we need to go out of state for anything innovative.
Ty for your time,
BH
Where did you get treatment? I am in NY, USA so Cleveland, Pittsburgh, Rochester, Albany, NYC is all doable. MD Anderson in Texas is #1 but the travel and cost is not an option now, but could become 1.
Where wouldnt you go for treatment? Roswell in Buffalo NY, is out. Surprised i didnt make news headlines after that fiasco.
Will not consider clinical trials, she got talked into 1 (was not present for Doctors recommendations) and i lost the first 4 months with her due to complications.
Alternative treatments ? I already started with CO and the tumor started to shrink, but the last batch was to strong or wrong strain / ratio tch cbd, and she thought it was 1979 for a month. Since then she is leery about it.
Any help or suggestions would be great. I would appreciate it if you or a loved one has gone through this battle to answer, since it would be experience and not " i heard that this place is good or this med/treatment/facility is on facebook and says it helps...."
I am 100% serious about this. This is not a joke of any kind, just looking for any thoughts with experience. I feel like i cant trust her GP since he sent her to Roswell, and the Oncologist said there is no treatment in this area, we need to go out of state for anything innovative.
Ty for your time,
BH
