Charity Drive...Some Posters Get Triggered If Others Renew Pro With Points...

[KVB]

Why would they get so triggered?

It's all a part of the SBR business model.

I donated to Angelman but am thinking of just turning points in to renew anyway.

Just because it seems to really piss some posters off.



Four years after this video and there is still much work to be done.

Big Pharma is involved and funding is high. Positive change is being created....

Any points I get in this thread for any of my posts will go to FAST and cureangelman unless there is outcry to spread the wealth to other charities as well.

[KVB]

This is from 2012 and shows personal celebrity support...

[Optional]

Renewing with points means SBR gets direct benefit and you're helping the site.

People could look at it that way.

[jjgold]

weird thread

weird guy

[KVB]

Renewing with points means SBR gets direct benefit and you're helping the site.

People could look at it that way.

That's what I was trying to say.

I just took one little dig opti. I promise I won't behave like this again. I know it was a little inappropriate for me to make such a thread title (this of course is something between you and me here, based on our recent communications).

But now it's about the Charity.

Offering just another chance for SBR contributors to step up like always.

Here's a video from 2019.

As a mono genteic disorder there is great promise and the private world has been amazing with how much they've stepped up to the cause.

[mjsuax13]

Renewing with points means SBR gets direct benefit and you're helping the site.

People could look at it that way.

That’s a great way to look at it. Agreed.

People should be less sensitive either way. It’s SBR’s decision.

[KVB]

weird thread

weird guy

Are you stepping up with a charity donation of any size (1 point minimum, I am sick in dealing with .99 point transactions, thank you) or are you just going to stand there and bleed?

[stevenash]

Renewing with points means SBR gets direct benefit and you're helping the site.

People could look at it that way.

I renewed with points last year,
I'll do it again come renewal time too.

[KVB]

Thanks for the replies guys.

Now donate a fukkin point you cheap muthafukkas!!!!!!!!!!

[BIGDAY]

KVB going to get me emotional tonight.

[KVB]

BigDay in the House!!!!!!!!!

[stevenash]

BigDay in the House!!!!!!!!!

[jjgold]

I do not get it

What is this for??

I have no time to read between the lines

[BIGDAY]

I do not get it

What is this for??

I have no time to read between the lines

[KVB]

Did you guys know that scientists do believe that Angelman Syndrome has the greatest potential for being cured when compared to other neurogenetic disorders?

It's amazing what they can do with technology just recently developed.

This is truly remarkable news.

Here's the website...https://cureangelman.org/

Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Children and adults with AS typically have balance issues, motor impairment and debilitating seizures. Some individuals never walk. Most do not speak. Disrupted sleep cycles also can be a serious challenge to the individual and caretaker(s).

Individuals with AS require continuous care and are unable to live independently. They have a normal life expectancy. This is life today for people living with Angelman syndrome, but hope is here. Scientists believe that AS has the greatest potential for being cured when compared to other neurogenetic disorders, and FAST (Foundation for Angelman Syndrome Therapeutics) has a plan well underway to achieve just that.

This is an awareness and fundraising thread.

Thank you already for your contributions guys.

[KVB]

BigDay already getting me emotional and it's only 12:30 my time.

[BIGDAY]

[semibluff]

Sorry. I have already reached my 2 point donation limit for today. Maybe tomorrow.

[KVB]

I know it's not Februaray 15th, but this June 2nd, donate 2 points to the cause.

Or you can go with the theme and rise to the challenge of 15 points to research chormosome 15.

[KVB]

Sorry. I have already reached my 2 point donation limit for today. Maybe tomorrow.

Thanks for checking in bluffer. You know I respect your sports betting experience and I can see by the occasional point you drop me that you can pick up what I try to put down sometimes. Thank you for that nod and I respect that too.

See you tomorrow.

[KVB]

Raise glass the real heros of Angeleman, aside from the kids.

The parents and caregivers.

This is serious, daily, and anyone who has cared for someone 24/7 can tell you, it can be draining.

Not really posting this for you to watch completely, but the point is awareness and education.

This video exists because it needs to.

Special thanks to all the professionals who have dedicated time to helping ordinary parents cope with such an extraordinary circumstance.

[jjgold]

<div><iframe width="300" height="60" src="https://vocaroo.com/embed/1k0F9KzWYcTg?autoplay=0" frameborder="0" allow="autoplay"></iframe><br><a href="https://voca.ro/1k0F9KzWYcTg"

[semibluff]

Thanks for checking in bluffer. You know I respect your sports betting experience and I can see by the occasional point you drop me that you can pick up what I try to put down sometimes. Thank you for that nod and I respect that too.

See you tomorrow.

Thank you. I'm not above abusing SBR's system to dump a whole bunch of points but we'd both get into trouble, and SBR doesn't deserve such abuse.

[stevek173]

<div><iframe width="300" height="60" src="https://vocaroo.com/embed/1k0F9KzWYcTg?autoplay=0" frameborder="0" allow="autoplay"></iframe><br><a rel="nofollow" href="https://voca.ro/1k0F9KzWYcTg"

[KVB]

<div><iframe width="300" height="60" src="https://vocaroo.com/embed/1k0F9KzWYcTg?autoplay=0" frameborder="0" allow="autoplay"></iframe><br><a rel="nofollow" href="https://voca.ro/1k0F9KzWYcTg"

[KVB]

Remember, every point counts.

Even just one point. There will be larger contributors, and I will top off the points to get us to a donation.

Like I did just now as we almost had 390 points already so I pushed us over with 110 to put in the first $30 donation and nickel over...lol.

[jjgold]

[KVB]

Date	Points	Donation
2-Jun	495	$30

Hopefully BigDay will come in here with some of his personal videos, earn some points, and send them my way.

But BigDay and MMAChicka aren't the only ones living with this...

This video isn't just about the heart, there is education here as well.

Awareness, Education, Fundraising.

Let's go SBR!

[stevek173]

https://voca.ro/1dju2vt0Bgwt

[semibluff]

Remember folks! June 2nd donations don't count towards the 2021 NFL salary cap. :wink:

[BIGDAY]

Here was the last one we made. We’re due for a new one!

[KVB]

Treeemendous video above, tell you so much about what to look for and how parents live and love with this.

They are amazing, humans, especailly kids. They adapt, they live, they laugh, they love they smile, the cry.

They do it all, save some functions, as a healthy kid.

During my time, many moons ago, at UCLA, I specialized in child development and loved what I did.

So some of this hits home with me, even if my home doesn't live with this directly.

[KVB]

https://voca.ro/1dju2vt0Bgwt

<div><iframe width="300" height="60" src="https://vocaroo.com/embed/1dju2vt0Bgwt?autoplay=0" frameborder="0" allow="autoplay"></iframe><br><a href="https://voca.ro/1dju2vt0Bgwt" title="Vocaroo Voice Recorder" target="_blank">View on Vocaroo &gt;&gt;</a></div>

[KVB]

Here was the last one we made. We’re due for a new one!

Man developmentally "stunted" or "slowed" or what have you is all about perspective.

Look at her grow up.

Get over here BigDay, come here pal...

[jjgold]

k175